Articole semnate de acelasi autor in Revista Romana de Pediatrie:

The child with congenital heart defect and his family

Revista Romana de PEDIATRIE | Volumul LX, Nr. 2, An 2011

ISSN 1454-0398 | e-ISSN 2069-6175
ISSN-L 1454-0398
DOI: 10.37897/RJP

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Alice Raica, Sonia Tănăsescu, Mădălina Gălice and Liviu Pop

ABSTRACT

Although congenital heart malformations represents a public health problem, the families of these children know little about the therapy, social work, special education or care-sharing concepts. Lately there is a tendency to involve more and more parents in the education of these children, while suggesting that the parents involvement only is not sufficient, they should always be educated and advised by a specialist. Parents need time to accept the diagnosis and require repeated explanations. The Ambulatory of the 2nd Pediatric Clinic has 620 children diagnosed with cardiac malformations, aged between 30 days and 16 years old. For these children is needed a complex team that includes pediatric cardiologist, a specialist radiologist, neurologist, ophthalmologist, psychologist. These children require constant monitoring in the background therapy, the optimal time of surgical intervention, children and parents overcoming anxiety. In conclusion, the family of a child with a heart disease should be educated on the disease and report any change of his medical condition to the pediatric cardiologist.

Key words: congenital heart malformations, children, therapy, special education

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Alice Raica

COPILUL CU MALFORMATII CONGENITALE DE CORD SI FAMILIA SA

ISSN 1454-0398 | e-ISSN 2069-6175
ISSN-L 1454-0398
DOI: 10.37897/RJP

National Awards “Science and Research”

NEW! RJP has announced the annually National Award for "Science and Research" for the best scientific articles published throughout the year in the official journal.

ICMJE- Recommendations

Read the Recommendations for the Conduct, Reporting, Editing, and Publication of Scholarly work in Medical Journals.

Promoting Global Health

Alice Raica, Sonia Tănăsescu, Mădălina Gălice and Liviu Pop

REZUMAT

Deşi malformaţiile congenitale de cord reprezintă o reală problemă de sănătate publică, familiile acestor copii ştiu puţin despre terapie, munca socială, educaţie specială sau conceptele de împărţire a îngrijirii. În ultimul timp există tendinţa de a implica tot mai mult părinţii în educaţia acestor copii, totodată sugerându-se că simpla implicare nu este suficientă, ei trebuind să fie educaţi şi sfătuiţi mereu de către un specialist. Părinţii au nevoie de timp pentru a se descărca de vină, pentru a acepta diagnosticul şi pentru a primi explicaţii repetate. Ambulatorul Clinicii II Pediatrie Timişoara are în evidenţă 620 de copii purtători de malformaţii cardiace, cu vârsta cuprinsă între 30 de zile şi 16 ani. Pentru aceşti copii este necesară o muncă în echipă, cu participarea, pe lângă pediatru, a cardiologului, specialistului radiolog, neurolog, oftalmolog, psiholog. Aceşti copii necesită monitorizare permanentă în privinţa terapiei de fond, momentul optim al intervenţiei chirugicale, depăşirea axietăţii copiilor şi a părinţilor. În concluzie, familia copilului purtător al unei boli cardiace trebuie să cunoască şi să fie instruită asupra bolii şi să sesizeze orice intercurenţă medicului cardiolog pediatru.

Cuvinte cheie: malformaţii de cord, copil, terapie, educaţie specială

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Alice Raica