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Revista Romana de PEDIATRIE | Volumul LX, Nr. 2, An 2011
ISSN 1454-0398  |  e-ISSN 2069-6175
ISSN-L 1454-0398

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The child with congenital heart defect and his family

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ABSTRACT

Although congenital heart malformations represents a public health problem, the families of these children know little about the therapy, social work, special education or care-sharing concepts. Lately there is a tendency to involve more and more parents in the education of these children, while suggesting that the parents involvement only is not sufficient, they should always be educated and advised by a specialist. Parents need time to accept the diagnosis and require repeated explanations. The Ambulatory of the 2nd Pediatric Clinic has 620 children diagnosed with cardiac malformations, aged between 30 days and 16 years old. For these children is needed a complex team that includes pediatric cardiologist, a specialist radiologist, neurologist, ophthalmologist, psychologist. These children require constant monitoring in the background therapy, the optimal time of surgical intervention, children and parents overcoming anxiety. In conclusion, the family of a child with a heart disease should be educated on the disease and report any change of his medical condition to the pediatric cardiologist.

Key words: congenital heart malformations, children, therapy, special education

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